My current “Normal”!

My stupid body has decided on a “new normal” and I am not happy about it.  I have not changed my dosing of my steroids (7am – 10 mgs HC, 11am – 5mgs HC, 2pm – 5mgs HC), but my days are becoming more difficult.  I wake up exhausted, even after sleeping all night.  I am napping every afternoon, or at least resting because I am so tired.  I don’t have the energy to take a shower or get dressed until late afternoon most days.  My evenings are better, seeming to have more energy and able to get something accomplished.  BUT, I still have at least one or two days a week that I am totally unable to do anything, and the day is spent in p.j.’s on the couch.  I have no idea why my body has decided to throw this new daily routine at me…………..I certainly have been worse………but I have definitely have been better.   The only explanation I can come up with is the change in weather……is that possible??

My bowels have been giving me the same problems as always, seeming to decide on a whim if they want want to trap me in the bathroom for hours, or not work at all.

I have decided to try and wean myself off my sleeping meds, I hate the nightmares and drugged feeling I get when taking Lunesta.  It doesn’t always work for me either, laying in bed staring at the ceiling for hours is so frustrating!

Getting off the seizure medication was the best decision I ever made. It made me spacey, drowsy, confused, dizzy and just so out of sorts!  Ten years on that medication is ten years wasted as far as I am concerned.

My cat is laying on the bed next to me showing me his belly…..must go and “rub da belly” now.


3 thoughts on “My current “Normal”!

  1. Oh what is this with our bodies wanting a new normal? I don’t like mine at all either. A 12 hour attack yesterday…I’m spent! with days just on the couch. We have to listen to the body though huh?
    Last night I was lying in bed thinking…what changed….well the you said, can it be that? Then I thought, you know, I have fluctuations, not normally to this extreme or for this long….I have stuff happens. Is it helping me to live over and over thinking…so what made it so much better then? Heck I can’t think of what it was.
    Is this my future? That is my biggest worry. Is this what I’m going to be like forever? Is this really my new normal?

    Ah…who knows. It changes doesn’t it? It changed to get to here, so who’s to say it won’t change for the better?

    I’m holding on to today. that moment when I am not spinning, like this moment, when I could come here and check on my friend. I’m cherishing this.

    and I’m cherishing the fact that my attacks are not normally as severe as they used to be. Yes I lie here spinning and sick, but I don’t lose all bodily functions. I normally don’t throw up….but that is due to the great drugs I’ve found for that.
    (I only put that in here because I know how very compassionate you are toward me with my attacks. They are still hell, but if I hadn’t been able to control the vomiting now, I know I’d be in the hospital.)

    I hope you can find a better normal.
    thoughts out to you.

  2. I am so sorry to hear about your Addisonian woes. I was diagnosed in 1973 and realize I have had a blessed life with Addisons. I take a lot more steriods that you, however. I take 20 mg cortef at 8am and 10 at 4 pm. My inability to get out of bed is usually related to depression. I was unable to wean off one of my 2 antidepressants, so back up, but I feel so much better. If you want to talk, feel free to email me.

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