Fatigue Monsters

Yesterday the overwhelming “fatigue monsters” started moving in, and today they have made themselves right at home.  I slept thirteen hours last night and then spent the whole day on the couch.  Too exhausted and weak to do anything.

Adrenal insufficiency can really knock you down and do it quickly with no warning.  I have been handling a stressful situation lately, and no matter how hard I try to overcome it, my body goes haywire.  Stress is my worst enemy, but there is stress in everyday living, you just can’t avoid it.

So, I am resting and taking it easy today. Hopefully tomorrow I will feel better and not like someone could knock me over with a feather.

Am I Old Yet?

maureen

I just turned 62.  Am I old now?  I remember when 62 meant you had a foot in the grave, or maybe both.  The worst thing about being 62 is that 63 will be here in a blink of an eye.  Years move faster now, unlike me, and there is nothing anyone can do to slow down the passing of years.

Remember how long it took to go from Kindergarten to eighth grade?  EONS!

mo

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Four years of high school……eternity!

Maureen at Summerfest

My twenties took forever….which is good because my twenties were

 A W E S O M E !

Soon however, things sped up.  My Mother told me that once you have kids, time means nothing, and after that, years just fly by.  She was right.

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I imagine that we are all traveling on a huge conveyor belt marked with our decades.  I have passed the one marked “60”, I hope I will pass up “70” also.  Unfortunately, I can’t see the end of my conveyor belt, but maybe that’s good.

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What does it feel like to have MS?

What does it feel like to have MS?

Great post trying to explain how you feel with MS. Good read!

lisaslunacy

Because common words, like “tired,” “fatigued,” “achy,” and “confused” don’t really convey what it’s like to have MS, please humor me on this little journey. Try to picture everything you read happening to you.

Your boss calls you into her office and says you have to leave immediately to go to Russia for a conference. You feel panic rising, but you get home as fast as you can and pack a carry-on bag. You put too much in and it becomes bulky and heavy, but you don’t have time to care. You race to the airport, worrying that you’re going to miss your flight.

All the way through getting your ticket and going through security, you continue to check your watch, hoping you’ll make your flight. You finally get to the plane and you are the last person to board. You are seated in the middle seat in the very…

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Trying something different

Since diagnosis of secondary adrenal insufficiency in 2001, I have tried several dosing schedules and doses trying to find what will help me feel “normal”.   Five days ago I changed my dosing times, starting at 6am with 10 mg HC, then 10mg at 9am, 5mg at noon, and 2.5 at 3pm.  So far…. so good!  I am waking up earleir with less drowsiness during the day,and having an easier time with sleep at night.   There has been much discussion online about the generic HC manufactured by Lineage,which is what I have been taking for months now,  Some people are reporting that they feel much better with the brand name CORTEF, so I contacted my doctor, and she ordered me some.  I should get that within a week, and hoping that helps me also.  Of course, I know that you can try something different, change things up and it doesn’t always work, you don’t improve much or for long. But I am willing to try this, pay the extra money for the brand name medication and take a chance.  I have an exciting summer coming, my son is getting married in June, in Colorado, in the mountains! High altitude, happy stress, traveling, different climate……all of which are not the greatest scenarios for us sickies.  Keeping my fingers crossed that a change will be a good thing for me for now.  change-1

I JUST WANT TO BE OKAY

Day by Day With My Adrenals

“Someone asked me what are my “Favorite/most useful coping skills – for pain, depression, and all the silly side effects that come with having chronic illness?””

Hmmmm?  Do I have any coping skills, or do I just roll with the flow?  My first thought is that I am only able to cope with my illnesses with the help from my medications.  Other than that, I don’t handle this “chronic illness stuff” well at all. But, I have made it  through many a bad day by remembering some basic things:

  • Accept what you have and don’t argue with God anymore…I don’t mean give up…just accept it

  • Accept help from the people who love you

  • Accept that your HUSBAND and kids are as frightened as you are about this new thing called “chronic illness”

  • Help your family understand what you need…I don’t mean a glass of cold pop or a sandwich…You need to tell them you need rest, understanding , companionship…

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Life with Multiple Sclerosis

Life with Multiple Sclerosis

lisaslunacy

I have lived with my Multiple Sclerosis diagnosis since 2010 and I still haven’t found the right words to explain what it’s like to others. I found the post below and was in tears while reading it. It says everything I’ve always wanted to say and couldn’t. I thank Penelope for giving me permission to share this and for somehow finding a way into my mind and heart and expressing my feelings so eloquently. Keep up the good fight, Penelope!


To whom it may concern: an open letter about life with Multiple Sclerosis

By Penelope Conway

To whom it may concern:

There is an entire world filled with people who don’t understand Multiple Sclerosis. I know since you don’t live with the disease yourself it is hard to comprehend, but I hope what I have to say will help open your eyes and heart to what life is really like…

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