My Blood Pressure

My blood pressure has been high for several years now.  I have taken many different medications, but none has solved the problem long term.  I saw my doctor on October 19, and my blood pressure in his office was 153/100! Yikes.  He changed my medications around, added a new one, and yesterday when I took my blood pressure it was 107/75.  Much better.

Let’s hope this medication keeps this problem under control for now and keeps it controlled long term.

My older sister went to the eye doctor today and she has cataracts.  She will have surgery sometime in early 2016.  I fear this is something else I will develop because of my daily steroids I take for my adrenal insufficiency.

Thank you steroids.  You keep me alive, but you’re killing me!

937ba2ced073c4b7337a475ca1469325

 

 

Advertisements

What the Heck is STRESS??

  1. Stress:  A state of mental or emotional strain or tension resulting from adverse or very demanding circumstances.
  2. Stress: Your bodies way of responding to any kind of demand or threat.  When you feel threatened your nervous system responds by releasing a flood of stress hormones, including adrenaline and cortisol, which in turn rouse the body for emergency action.

But, if you have adrenal insufficiency, your body doesn’t produce the hormones needed to handle stress.  I have adrenal insufficiency and it is a life-threatening illness.

I could go on and on about stress, but most people only think of the normal stress that everyone experiences on a day to day basis.  The stress that aggravates you, puts you in a bad mood, makes you cross with your family or co-workers can land me in the emergency room. An injury or illness can stress out my body so quickly that I don’t see it coming.

Several years ago, my Father-In-Law was suffering from cancer and was moved to a nursing home.  We had out of town family staying at our house, and when he passed away we had all the planning and arrangements to take care of.  A very stressful time.  My family kept a close eye on me, made sure I “stress dosed” and got enough rest.  I made it through the whole thing perfectly.  Two weeks later, my cat died.  I ended up in the hospital with my worst adrenal crisis to date. Dangerously low potassium, sodium and blood pressure.

Another incident that lead to an adrenal crisis was food poisoning.  A UTI threw me in the emergency room with no warning also.

If you have adrenal insufficiency, you must always be prepared! Let people around you understand the importance of your emergency injections, and getting you to the hospital quickly for IV steroids and treatment.

You never know what can start an adrenal crisis, be aware of what your body is telling you.  Don’t ever think you can “ride it out” and get better on your own.  Go to the hospital!

ambulance2

 

 

Note in a Christmas Card

Dear Friend,

I was so surprised to see you at the store the other day!  When I said you looked so good, you starting crying.  I didn’t know. I’m sorry. I remember when you got sick so many years ago, after all this time I just assumed you were better.  I didn’t know.  I remember that we used to talk on the phone a lot and when we would bump into each other at the grocery store we would stop and gab for a few minutes, and I remember those baseball games when the kids were little, it was always so hot!  I thought our lives had just changed because the kids grew up, I didn’t know what you were still going through.  Like the old saying…”out of sight, out of mind”, I guess.  Hadn’t seen you at church for a long time, but you told me it is hard to get ready and get there.  I didn’t know.  You told me you seldom drive or go anywhere.  You told me that both boys moved all the way to Denver, I didn’t know that.  I didn’t know you had to quit your job and you haven’t worked since 2001.  I didn’t realize you have been ill since 2001, how could that be?  After siting with you for a while I learned about your illness.  I didn’t know there was no cure.  I didn’t know how your illness has totally changed your life.  I didn’t know your husband works three jobs, I guess that’s why I never see him!  I didn’t know that most of your friends have stopped calling you, just like I did.  I admit that I stopped inviting you to things at my house because you often declined or cancelled last minute. I didn’t know you were that sick.  You look so good, like nothing in the world could be wrong.  I will never say that again to you.  Instead I will ask you if there is anything I can do for you. A ride to the doctor?  Pick up your prescription? Take the dog to the groomer or for a walk? Come over and watch TV and help you with your laundry? I am so so sorry, I just didn’t know.

Love, Carla

The Name Game – A Contest

I’m asking all my creative Friends to help me find a new name for my blog.  I’ve been writing about my adrenal disease for years, but have really avoided discussions about my digestive issues. It can be embarrassing to talk about “poop”, but let’s face it…everybody poops!   Crohn’s Disease can be debilitating and often harder to deal with than my other illness.  My adrenals have been behaving, more or less, so I have nothing to complain about….except my poop problems. I want my blog’s name to reflect my challenge with both Crohn’s and Addison’s Disease.

So here goes.  Whoever comes up with a great name……wins! The winner will receive a box of cheesy Chicago memorabilia straight from Walgreen’s and the Dollar Store…..we have good junk here in the Windy City.

Submit your idea in a comment…..asap….and I will pick a worthy name and send out your prize!

Anniversary

Twelve years ago this month I was diagnosed with a condition that would change my life completely. With a “diagnosis” everyone assumes there is a “cure” and that life will get back to normal eventually. But, that didn’t happen. I understand that I am very lucky that my condition is treatable. If I take care of myself, take my medications and see my doctors regularly this disease shouldn’t shorten my life.  But, it has changed my life.

I cannot get used to the fatigue.  Over powering fatigue.  Debilitating fatigue.  Can’t sit up fatigue.  So weak you hold your pee until it hurts fatigue because the bathroom is so far away.  Feel like you have the flu fatigue.  Miss every party and get together fatigue. Frustrating fatigue.  Hard to cope fatigue.  Impossible to explain fatigue.

Every night when I go to bed I think to myself that tomorrow I will feel better. Sometimes I do….and then I must remind myself to not overdo it…and if I do I will pay for it for days.

Happy anniversary.  I am having cake.

749364-1_TN_shadow

Another day

My hubby Joe has been home since Friday doing some DIY work.  Because he has been spending so much time in the house he has been re-aquainted with the unpredictability of my day to day activities.  He has dealt with my illnesses along with me since 2001, and has been there through everything.  He understands that my energy level can change quickly.  He understands that I cannot leave the house if my Crohn’s monsters are visiting.  He understand that I might spend the morning sleeping, and then still need to rest in the afternoon.  He understands that my pain levels can be minimal for days and then be doubled over with cramping and spasms with no warning.  He knows that planning something doesn’t mean it will really happen.

Today I am totally exhausted.  I changed the sheets on the bed and it knocked me out.  I am pissed at my body today.