My current “Normal”!

My stupid body has decided on a “new normal” and I am not happy about it.  I have not changed my dosing of my steroids (7am – 10 mgs HC, 11am – 5mgs HC, 2pm – 5mgs HC), but my days are becoming more difficult.  I wake up exhausted, even after sleeping all night.  I am napping every afternoon, or at least resting because I am so tired.  I don’t have the energy to take a shower or get dressed until late afternoon most days.  My evenings are better, seeming to have more energy and able to get something accomplished.  BUT, I still have at least one or two days a week that I am totally unable to do anything, and the day is spent in p.j.’s on the couch.  I have no idea why my body has decided to throw this new daily routine at me…………..I certainly have been worse………but I have definitely have been better.   The only explanation I can come up with is the change in weather……is that possible??

My bowels have been giving me the same problems as always, seeming to decide on a whim if they want want to trap me in the bathroom for hours, or not work at all.

I have decided to try and wean myself off my sleeping meds, I hate the nightmares and drugged feeling I get when taking Lunesta.  It doesn’t always work for me either, laying in bed staring at the ceiling for hours is so frustrating!

Getting off the seizure medication was the best decision I ever made. It made me spacey, drowsy, confused, dizzy and just so out of sorts!  Ten years on that medication is ten years wasted as far as I am concerned.

My cat is laying on the bed next to me showing me his belly…..must go and “rub da belly” now.

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