Surgery when you have Addison’s Disease

If you are faced with an upcoming surgery you must be prepared.  I had a bowel-resection in 2006, and was very nervous about it.

Even though my Internist and my Endocrinologist knew I was having surgery and were aware of complications that could arise during the procedure, I had to make sure that the Surgeon and anesthesiologist knew about my Addison’s Disease.  I talked to my Surgeon at length explaining what my needs were as far as steroids to be administered, how much and when.  He was quite patient with me, knowing how nervous petrified I was.

Before surgery I asked to talk to the anesthesiologist who would be working with my surgeon, she came to my room and talked to me and explained her procedures.  She administered solu-cortef before the surgery started, and then a continuous supply during the four-hour surgery.  Afterwards, during my hospital recovery I was given Solu-Cortef via IV until discharge.  At home I did a slow taper for about a week.  Without complications or post-surgery infections I recovered quickly and completely.

Don’t assume that all the doctors and nurses understand your Addison’s Disease.  I have encountered medical professionals that know little or nothing about my disease.  Don’t feel embarrassed to talk to everyone involved in your care.  Better to talk about  your needs sooner than later.

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Fighting Fatigue

Yesterday I decided to go to the grocery store by myself.  Stupid idea.  Stupid stupid idea.  After about fifteen minutes I knew I was in trouble, so I finished what I could, had a kid help me put it in the car and drove home exhausted. 

The Joe-Man was home when I got there so he carried everything in and put it away.  I could have never done it myself. 

Why don’t I learn?  Why did I think I could shop on my own?  Today I am paying for it big time.

Fatigue and weakness is a problem for so many of us with chronic conditions.  Sleep and rest are the only thing we can do until we feel better.  For me, sometimes it takes a few day to pull myself out of the funk I have caused myself. 

And the there is the fatigue that you can’t explain.  Even when you don’t do anything to cause the spiral downwards…it will still show up with no warning.  Stress will throw me into a tailspin, so will the heat.  Because of my G.I. problems, a day spent in the bathroom knocks me out for days.  Unexpected stress, a bad bathroom bout or a night with no sleep can guarantee you a day on the couch or in bed.   

Trying to pace yourself, and listening to your body (and that little voice in your head) can do a lot in preventing a fatigue fallout.

I know I will walk hand-in-hand with fatigue for the rest of my life.  There’s nothing I can do about it.  Except…take a nap.

http://www.youtube.com/watch?v=MIENus8bJlY

Thanks

Just wanted to thank all of my long time followers, and say Welcome to the new bloggers I have found through NaBoPloMo and Chronic Babe.  All of your comments mean a lot to me, and I appreciate the time you take to read and respond.

This is an open blog, it can be found through search engines.  I cannot block anyone,  I can only delete/spam comments. 

None of my blogs are about any specific group or individual.  I occasionally write about my Mom, my kids or my husband or friends.   I will never, nor have I written about someone else’s blog or life without identifying them.

Just wanted to clear that up. 

mo

Judgement Day

Judge not, lest you be judged

I have a friend that has cerebral Palsy.  He is in a wheelchair, and he is hard to understand.  He sells newspapers at my church.  Many people just put the money on the table and take their paper.  No eye contact, no greeting. 

I have a nephew that has tattoos.  A bunch of tattoos, both arms.  They call them “full sleeve”.  He has some on his neck and on his legs.  He also has some piercings on his face.  He hides them by wearing long sleeves at family gatherings, because some people don’t like them.    You would be surprised at what he does for a living, and how tender he is with his nieces and nephews.

I know a girl who  used to dress with clothes from Salvation Army.  The wilder the more outrageous  the better for her.  Sometimes her hair was pink, other times blue.  She had piercings on her face, and enough holes in her ears to wear dozens of earrings.  I love her.

I have a friend who is a priest.  He is funny.  He doesn’t preach.  He has come to parties at my house, and people thought he was just a family friend.  He drinks beer, has gone camping and hiking with my husband all over the country.  He is the best friend my Husband has ever had.

I know a young man who is deaf.  He reads lips, and speaks quite clearly unless he tries to talk too fast.  I have seen people avoid his gaze and walk away because they don’t want to bother taking the time to have a conversation with him.

I know a woman who is blind.  Her kids went to school with my kids.  Other Mom’s would walk right past her, maybe they were put off by her gaze because she didn’t wear sunglasses.  I see her every so often, and I always stop and talk to her.  She is a wonderful Mom and woman. 

I know a young man who is severely dyslexic.  His whole life people have assumed that he was “dumb” because he had such a hard time in school.  You would be surprised at his IQ.

I know a woman who is sick.  She has a disease that no one has heard of.  They look it up on the internet and think….well, it’s not fatal if she takes care of herself.  People cannot understand how she could be so sick for so long.  People don’t understand that  there are “lifelong” conditions.  That they will never go away. 

“Normals”  don’t want to hear or think about sick people, or people who are different.  I guess it is easier to ignore people than try to understand them.  

Don’t turn your head, don’t walk the other way.  Do not judge.

National Health Blog Post Month

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Well…I did it.  I signed up for the National Health Blog Post Month.  All I have to do is write a post everyday for the entire month of November.  I am going to try to inform people about various Endocrine disorders, and also discuss some of the different diseases I have learned of from my many friends in the blog world.

Day one done!

p.s.  I am too optimistic for my own good…I also signed up for NaBloPoMo using my other blog:  Mo is Blogging…I think

Wish me luck. 

mo